Chronic Illness Chronicles

There are good days. There are bad days. It never goes away. People mean well, but it just makes my blood boil when people tell me to get well. No matter how much you say "chronic illness" you still hear it.  I'm in a lot of pain but I managed to cook dinner. Super yummy balsamic glazed chicken breasts with roasted garlic potatoes and zucchini. It was divine.  Still in a lot of pain, but I'm trying not to take the Norco because it makes me feel super yucky, but helps the pain so it's a loose- loose situation.  Ben won't let me go talk to the ortho surgeon or rheumatologist until we get better insurance in November, so this pain isn't going anywhere anytime soon. I really need to see my cardiologist too, I'm way overdue with her, as well as my gyno. But I guess I'll just have to live until I can see them.  Started looking for a wheelchair for when I need it, which is getting more frequent.  Day thirty one Chronicle: Complete. 

Dislocated my right shoulder again this evening. My husband was able to get it back in. It's just so incredibly painful from four dislocations in the span of a week. The pain killers are barely touching it.  My daughter and father are visiting my sister and her family in Nashville for a few days. It looks like a blast. I really wish I could've been okay to go, but once again, my health prevents me from doing fun stuff.  I miss my sister and her boys so much.  My husband came home and cleaned some since the house was a disaster from being unable to use my right arm hardly at all and a lot of orthostatic intolerance. Migraines have been happening a lot lately too.  I'm super sore, and my lower back, where I had surgery on a herniated disc a couple years back is really getting bad again.  Well, enough whining.  Prayers for some physical relief and to have my usual optimism back would be appreciated.  I need to be able to function a little soon. Ben said he feels like a slave b

Been mostly bed bound for a little over a week. Had to go to the hospital because my husband couldn't set my right shoulder dislocation. They're sending me to an orthopedic surgeon to talk about surgery. Also referred me to a rheumatologist to talk about my hEDS.  I posted an article about understanding chronic illness for abled people, my mother thinks I posted it just for her and not the 556 people following me, and has blocked me on Facebook and will not answer my texts. Mature. For some reason she gets super offended when I try to raise awareness about differently abled people.  Well, last night I dislocated my right shoulder again but eventually Ben was able to get it back in.  Having trouble breathing and can't find my inhaler.  In so much pain and beyond tired.  Would love prayers and support.  Day twenty nine Chronicle: Complete.