Lots of pain and fatigue and nausea. 
Lots of frustration and isolation and stress. 
Haven't showed in over a week. 
Wearing dirty clothes. 
Don't have any clothes that fit. 
Who cares. 
Day nine Chronicle: Complete. 

Comments

Post a Comment

Popular posts from this blog

An Article From The Mighty I Wanted To Share

  An article from The Mighty that I wanted to share What I Wish You Knew: The Side of EDS No One Sees Christina Gooch April 14, 2018 As many of my fellow zebras know, people often downplay the seriousness of this disorder. Not out of malice, mind you, but due to a lack of understanding. “Well it can’t be that bad, EDS just means you’re super bendy, right?” EDS is not just “being super flexible.” It is progressive, painful, incurable and horribly limiting. I caused a shoulder subluxation the other day when I tossed a burp cloth across the room for my husband. I deal with hip subluxations multiple times daily. Yes, even during, ahem, “intimate times.” It’s about as fun as it sounds. My fingers stiffen and lock up at random, and I have so little strength in my wrists and hands that I can’t even open a jar of pickles by myself. I’ve gotten very good at just popping my joints back into place when they start to slip out. I often have to force my body up out of bed or off a chair or couch...
Read more

Flares

Image
Been mostly bed bound for a little over a week. Had to go to the hospital because my husband couldn't set my right shoulder dislocation. They're sending me to an orthopedic surgeon to talk about surgery. Also referred me to a rheumatologist to talk about my hEDS.  I posted an article about understanding chronic illness for abled people, my mother thinks I posted it just for her and not the 556 people following me, and has blocked me on Facebook and will not answer my texts. Mature. For some reason she gets super offended when I try to raise awareness about differently abled people.  Well, last night I dislocated my right shoulder again but eventually Ben was able to get it back in.  Having trouble breathing and can't find my inhaler.  In so much pain and beyond tired.  Would love prayers and support.  Day twenty nine Chronicle: Complete. 
Read more