An article from The Mighty that I wanted to share What I Wish You Knew: The Side of EDS No One Sees Christina Gooch April 14, 2018 As many of my fellow zebras know, people often downplay the seriousness of this disorder. Not out of malice, mind you, but due to a lack of understanding. “Well it can’t be that bad, EDS just means you’re super bendy, right?” EDS is not just “being super flexible.” It is progressive, painful, incurable and horribly limiting. I caused a shoulder subluxation the other day when I tossed a burp cloth across the room for my husband. I deal with hip subluxations multiple times daily. Yes, even during, ahem, “intimate times.” It’s about as fun as it sounds. My fingers stiffen and lock up at random, and I have so little strength in my wrists and hands that I can’t even open a jar of pickles by myself. I’ve gotten very good at just popping my joints back into place when they start to slip out. I often have to force my body up out of bed or off a chair or couch...
Dislocated my right shoulder again this evening. My husband was able to get it back in. It's just so incredibly painful from four dislocations in the span of a week. The pain killers are barely touching it. My daughter and father are visiting my sister and her family in Nashville for a few days. It looks like a blast. I really wish I could've been okay to go, but once again, my health prevents me from doing fun stuff. I miss my sister and her boys so much. My husband came home and cleaned some since the house was a disaster from being unable to use my right arm hardly at all and a lot of orthostatic intolerance. Migraines have been happening a lot lately too. I'm super sore, and my lower back, where I had surgery on a herniated disc a couple years back is really getting bad again. Well, enough whining. Prayers for some physical relief and to have my usual optimism back would be appreciated. I need to be able to function a little soon. Ben said h...
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