An Article From The Mighty I Wanted To Share
An article from The Mighty that I wanted to share What I Wish You Knew: The Side of EDS No One Sees Christina Gooch April 14, 2018 As many of my fellow zebras know, people often downplay the seriousness of this disorder. Not out of malice, mind you, but due to a lack of understanding. “Well it can’t be that bad, EDS just means you’re super bendy, right?” EDS is not just “being super flexible.” It is progressive, painful, incurable and horribly limiting. I caused a shoulder subluxation the other day when I tossed a burp cloth across the room for my husband. I deal with hip subluxations multiple times daily. Yes, even during, ahem, “intimate times.” It’s about as fun as it sounds. My fingers stiffen and lock up at random, and I have so little strength in my wrists and hands that I can’t even open a jar of pickles by myself. I’ve gotten very good at just popping my joints back into place when they start to slip out. I often have to force my body up out of bed or off a chair or couch wit